Living With Cystic Fibrosis
Cystic fibrosis has been a major part of not only my life , but my families’ lives too. I have two sisters , my twin Alani, and my oldest sister Adriana ,who also suffer from cystic fibrosis . Our family supports us everyday to help fight this disease .
Living with this disease has been very difficult for everyday life. From taking up to thirty pills a day, to takin twenty minute long respiratory clearance three times a day ,to frequent three week hospital visits and doctor’s appointments yearly, cystic fibrosis takes up most of our time . We have to evolve our daily schedules around all of our therapy and sometimes it gets very difficult and frustrating. There's no way we can live a “normal life” with cystic fibrosis but we try our best.
Living with this disease has been very difficult for everyday life. From taking up to thirty pills a day, to takin twenty minute long respiratory clearance three times a day ,to frequent three week hospital visits and doctor’s appointments yearly, cystic fibrosis takes up most of our time . We have to evolve our daily schedules around all of our therapy and sometimes it gets very difficult and frustrating. There's no way we can live a “normal life” with cystic fibrosis but we try our best.