Every child matters and the quality of life of disabled children.
This assignment explores the perceived quality of life of children with disabilities, and the impact of the United Kingdom Government ‘Every Child Matters’ initiative.
The World Health Organisation (WHO) define quality of life as ‘ the individual’s perception of their position in life in the context of the culture and value systems in which they live, and in relation to their goals, expectations, standards and concerns’.
This is an excellent definition as it places the emphasis on the perspective of the child, and in that respect is inherently free from value judgements from ‘typically developing’ …show more content…
Often a lack of knowledge, training and understanding could be the cause. This is an area where ECM appears to have faltered, each public service that comes into contact with young people are required to have a strategy and policies in place to support ECM, but how many have consulted other social providers and looked at ways of ‘dovetailing’ their provision in the spirit of inter-agency working; this could involve using shared resources and providing an overall better service and further remove social barriers to participation for children with disabilities.
Although the Every Child Matters policy was initially driven by social security and child welfare failings such as Victoria Climbie and baby P and their respective public enquiries, it is clear that children with disabilities are encompassed by this remit and although some progress has been made, commentators and researchers have not seen this progress driven by the ECM initiative but by existing primary legislation (Sloper, 2009) such as Disability Discrimination Acts and the various Education …show more content…
(2003) The views and experiences of disabled children and their siblings : A positive outlook. Jessica Kingsley : London.
DfES (2003). Every Child Matters. Department for Education and Skills Publications : Nottingham.
Fraser, S., Lewis, V., Ding, S., Kellett., & Robinson, C. (2007) Doing Research With Children and Young People. London: Sage.
Hirst, M., and Baldwin, S. (1994) Unequal Opportunities : Growing up disabled. HMSO : London.
Lewis, V., Kellett, M., Robinson, C., Fraser, S. & Ding, S. (2007) The reality of doing research with children and young people. London : Sage.
Sloper, P. (2009) Every Child Matters outcomes: What Do They Mean for Disabled Children and Young People? Children and Society Vol. 23 (2009) pp. 265-278
UN Convention on the rights of the child, 1989 (UNESCO)
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[1] Montieth (1999) quoted in Lewis, V., Kellett, M., Robinson, C., Fraser, S. & Ding, S. (2007) The reality of doing research with children and young people. London : Sage.
[2] Fraser, S., Lewis, V., Ding, S., Kellett., & Robinson, C. (2007) Doing Research With Children and Young People. London: Sage.
[3] DfES (2003). Every Child Matters. Department for Education and Skills Publications :